We are dedicated to raising awareness about sickle cell disease and providing comprehensive support to warriors, families, and communities. Our mission is to educate, advocate, and break down barriers through testing, counseling, and building a strong support network.
75
Awareness Programs
23
Partners
Access to Health Care, Behavior Change, Breaking SCD cycle in Uganda.
We provide free sickle cell testing services to help individuals know their genotype and make informed health decisions
Professional counseling and support for warriors, families, and couples to understand and manage sickle cell disease
Community outreach and education programs to raise awareness about sickle cell disease and prevention
Building a strong community of warriors, families, and advocates working together for better healthcare access
We are expanding our reach to provide comprehensive support to sickle cell warriors and their families. Our goal is to empower through education, testing, advocacy, and creating lasting positive change.
Training healthcare professionals for better management of Sickle Cell Disease.
Raising public awareness to reduce stigma and promote prevention.
Enhancing early detection programs for timely intervention.
Promoting access to evidence-based treatments and essential drugs.
Advocating for inclusion and support of people living with Sickle Cell Disease.
We offer various programs and services throughout the week to support sickle cell warriors and their families,
Sickle cell disease (SCD) is an inherited blood disorder that affects hemoglobin, the protein in red blood cells that carries oxygen throughout the body. In SCD, red blood cells become rigid and crescent-shaped (like a sickle), which can block blood flow, cause severe pain crises, anemia, organ damage, and increased risk of infections.
Genotype testing identifies if someone carries the sickle cell trait (AS) or has the disease (SS). It's crucial for family planning, as two carriers have a 25% chance of having a child with SCD per pregnancy. Early testing allows informed decisions and prevents unexpected diagnoses.
Support by educating yourself and others, donating blood (especially from diverse donors), listening without judgment, encouraging healthy habits like hydration and rest, and advocating for better care and research. Small acts of understanding make a big difference.
We provide education and awareness programs, support groups for patients and families, counseling, advocacy for better healthcare access, community outreach events, and resources for managing sickle cell disease.
Get involved by volunteering, donating, participating in awareness events, sharing educational content, advocating for policy changes, or joining support networks. Every effort helps raise awareness and support those affected by sickle cell disease.
When my child was diagnosed with sickle cell disease, we felt lost and overwhelmed. The support groups and educational resources from this organization gave us hope and practical tools to manage the condition. We've connected with other families and no longer feel alone in this journey.
Living with sickle cell has its challenges, but the awareness campaigns and advocacy here have empowered me to speak up and educate others. The community events brought light during tough times and reminded me that I'm a warrior, not defined by the disease.
The counseling and outreach programs helped our entire family understand sickle cell better. From genotype testing guidance to emotional support, this organization has been a lifeline, turning fear into strength and raising awareness in our community.
Through volunteering and participating in events, I've found purpose beyond the pain crises. This foundation's dedication to research and patient support inspires me daily—it's more than an organization; it's a family fighting for a cure together.
Stay informed about sickle cell awareness and testing events
